Navigation:	Title:	Summary:
Start page 782505	onderde.nl	All websites under the .nl top-level domain organised by categories, keywords and locations.
↳foundation 6678	Organizations and Foundations in Nederland	This listing features non-profit organizations and foundations operating within Nederland, encompassing a diverse range of social, cultural, and charitable initiatives.
↳foundation + Rare Diseases 21	Rare Disease Foundations & Support	These organizations provide support, information, and advocacy for individuals and families affected by rare and often chronic medical conditions. Many focus on specific diseases, funding research and raising awareness to improve diagnoses and treatments.

21 Websites:	Organisations:	Summaries:	Related categories:	Related keywords:	Related locations:
energy4all.nl	Stichting Energy4All	Stichting Energy4All is an organization dedicated to researching and combating mitochondrial diseases.	Disease & Treatment → Diseases 829 Disease & Treatment → Rare Diseases 229	medical 216 disease 285 medicine 435 foundation 6678 research 8967
stophersentumoren.nl	STOPhersentumoren.nl	The STOPhersentumoren.nl Foundation is an organization that raises funds for research into brain tumors.	Charities → Fundraising 1005 Cancer → Brain Tumors 11	brain tumor 17 peer support 68 donation 5110 foundation 6678 research 8967
ushersyndroom.nl	Stichting Ushersyndroom	The Stichting Ushersyndroom is an organization dedicated to research and awareness regarding Usher syndrome.	Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229	awareness 1735 patient 4082 foundation 6678 research 8967
amyloidose.nl	Amyloïdose Nederland	Amyloïdose Nederland is a patient organization dedicated to advocating for individuals with amyloïdose.	Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229	patient 4082 foundation 6678 story 8285 treatment 21203
voorsara.nl	Stichting Voor Sara	The website ‘Fighting Rare Muscular Dystrophies | For Sara’ is focused on fundraising and support for patients with Lama2-MD and other rare muscle diseases.	Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229	fighter 23 artwork 2248 donation 5110 foundation 6678 research 8967
kaisz.nl	Stichting KAISZ	The website of Stichting KAISZ is dedicated to providing information and support for individuals affected by KAISZ disease, a rare autoinflammatory condition.	Monuments → Cultural Heritage 514 Disease & Treatment → Rare Diseases 229	database 1153 podcast 3328 foundation 6678
stichtingveteranenziekte.nl	Stichting Veteranenziekte	The Stichting Veteranenziekte is a patient organization that provides peer support, information, and advocacy.	Organizations → Society 767 Disease & Treatment → Rare Diseases 229	relatives 27 peer support 68 legionella 73 foundation 6678
noordzeeziekte.nl	Stichting Noordzeeziekte	The Stichting Noordzeeziekte is dedicated to funding scientific research into this rare disease, with the hope of developing a future treatment.	Research → Medical Research 384 Disease & Treatment → Rare Diseases 229	subsidy 2649 foundation 6678 research 8967	Netherlands → Groningen 23734
twanfoundation.nl	Twan Foundation	The Twan Foundation is a foundation established by the parents of Twan, a boy with Ataxia Telangiectasia, providing information and support to families with this rare condition and offering donation and newsletter subscription options.	Social Services → Welfare 1001 Disease & Treatment → Rare Diseases 229	diagnosis 1490 donation 5110 family 6462 newsletter 6504 foundation 6678	Utrecht → Veenendaal 2641
stichtingziektevanpompe.nl	Stichting Ziekte van Pompe	The Stichting Ziekte van Pompe is an organization dedicated to research, support, and awareness regarding Pompe disease.	Diseases → Neurological Diseases 21 Disease & Treatment → Rare Diseases 229	board 3438 patient 4082 donation 5110 foundation 6678 research 8967
zeldzaamziek.nl	Stichting Zeldzaam Ziek	The Zeldzaam Ziek website aims to provide information, advice, and a platform for sharing experiences related to rare and chronic diseases.	Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229	disease 285 patient 4082 foundation 6678 story 8285 care 12338
stichtingkabukisyndroom.nl	Stichting Kabuki Syndroom	The Stichting Kabuki Syndroom is an organization dedicated to helping people with the Kabuki syndrome live their lives to the fullest.	Social Organization → Patient Organizations 259 Disease & Treatment → Rare Diseases 229	donate 77 foundation 6678
ahus.nl	Stichting aHUS Nederland	The website of aHUS Netherlands aims to increase awareness of aHUS and improve the reimbursement for its treatment.	Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229	medical 216 patient 4082 donation 5110 foundation 6678 treatment 21203
debasstichting.nl	The Bas Stichting	The Bas Stichting is an organization that supports research into juvenile dermatomyositis.	Science → Medical Sciences 97 Disease & Treatment → Rare Diseases 229	research team 10 policy plan 114 donation 5110 foundation 6678 research 8967
stichtingwalkingwithgiants.nl	Walking With Giants	Walking With Giants is a foundation dedicated to supporting individuals and families affected by primordial dwarfism.	Research → Medical Research 384 Disease & Treatment → Rare Diseases 229	donation 5110 foundation 6678
stichtingacd.nl	Stichting ACD	The Stichting ACD is dedicated to fighting Alveolaire Capillaire Dysplasie (ACD) and raising funds for research.	Charities → Fundraising 1005 Disease & Treatment → Rare Diseases 229	foundation 6678 research 8967
ptls.nl	Stichting PTLS Nederland	The website of Stichting PTLS Nederland provides information and support for families and professionals dealing with the Potocki-Lupski Syndrome (PTLS).	Disease & Treatment → Rare Diseases 229 Family → Parents 525	webinar 870 diagnosis 1490 foundation 6678
stichtingeckroosen.nl	Stichting Eck Roosen	The website of Stichting Eck Roosen aims to raise funds for fundamental research into the treatment of pancreatic cancer.	Charities → Fundraising 1005 Diseases → Cancer 546	cancer 631 donation 5110 foundation 6678 research 8967 event 45199
1000kaarsjes.nl	Stichting 1000 kaarsjes voor Juultje	The Stichting 1000 kaarsjes voor Juultje is a fund dedicated to scientific research into the rare disease LCH.	Animal Welfare → Animal Protection 173 Disease & Treatment → Rare Diseases 229	donation 5110 foundation 6678 research 8967
stichtingmetamandy.nl	Stichting MetaMandy	The website of Stichting MetaMandy provides information and fundraising efforts for children with metabolic diseases, specifically MLD.	Philanthropy → Donations 140 Disease & Treatment → Rare Diseases 229	wheelchair bus 46 donate 77 foundation 6678
stichtingteun.nl	Stichting TEUN	The Stichting TEUN is an organization dedicated to raising funds for research into Emery Dreifuss and other muscle diseases.	Social Organization → Child Welfare 1147 Disease & Treatment → Rare Diseases 229	brother 83 disease 285 future 404 parent 4318 foundation 6678 research 8967

Title:	Description:
About the site:	Website created by József Jároli. Initial release, site is still under development.
Legal disclaimer:	This directory contains links to third-party websites. All information displayed originates from the respective websites and has not been fact-checked or endorsed by us. Promoted listings are clearly marked as such. We do not assume any responsibility for the accuracy, completeness, or reliability of content found on linked websites. Users access external sites at their own risk.
Advertising disclosure:	This website uses Google AdSense to display advertisements. Google and its partners may use cookies and other technologies to collect information about your visits to this site and other websites to provide relevant advertisements. You can opt out of personalized advertising by visiting Google's Ad Settings or YourAdChoices.com. For more information about Google's privacy practices, please review Google's Privacy Policy.